If you were to pay someone’s wages for two or three years, you’d expect them to achieve something, wouldn’t you?
If you were a board discussing different projects, with different board members in favour of different projects then you’d expect reasoned debate without personal attacks or breaking into cheering and jeering, wouldn’t you?
If you offered the option to spend some money now knowing that it would save more over the long term, you would expect it to be taken up wouldn’t you?
If you were given advice by an expert you’d take it on board wouldn’t you?
Maybe I’m too idealistic, or even naive. More likely, I’m too frustrated.
Frustrated that short-term political gains and short-termism in general.
We’re faced with a time when someone fuelled by partisanship (and alcohol) can run onto a football pitch, attack someone, and wind up in jail.
At the same time, those whose job is to provide leadership and set an example to the country have been fighting, positioning, and showing no respect to their peers or their position.
Short termism has such a drastic knock on for the future.
We asked our CCG to refer our son for assessment to the FASD clinic in Surrey. Their response was that it would not add any benefit for him at the moment, so our application for an individual funding request was declined.
So we’re left with no professionals with an understanding of FASD, which means that his current and future needs will be assessed by those without the relevant knowledge, which will mean that any treatment could be inappropriate (he’s already had to endure trial runs of ADHD meds which set him back a lot), and nobody is anticipating what he might need in the future/the best way to support him.
By applying the wrong support techniques or medication, additional issues could arise which will take up more of professionals’ time and resources.
It also leaves us, his parents, who are the true experts in our son (and in FASD when it comes to all those we’re dealing with) exasperated and feeling ignored.
All this because a relatively small amount of funding could not be made available for something which is not available in our county.
I don’t imagine we are alone in this.
All the misdiagnosis, lack of forward planning by service providers (medical, educational, social) will cost our country in the long run – costs that could be avoided with a bit of forethought, planning and long-term perspective.
Costs that could well have been easier to meet had we not had 2-3 years of time where our politicians have argued incessantly rather than implemented policies that could prevent suffering for our children.